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October 30, 2009

Breast cancer scare an insurance nightmare

Posted: 02:05 PM ET

By Ashley J. WennersHerron
CNN Medical News Intern

Breast cancer runs in my family; even my dad had it. I routinely do self-checks, always terrified that I'll find some indication of my worst nightmare.

Two weeks ago, I did. I found a lump the size of a pea buried in the skin between my right breast and my armpit. I paled, I cried, I panicked about the future, and then I did the sensible thing. I searched the Internet. Typing "Right Breast Lump and 20-Year-Old Woman" into Google didn't reveal anything. Neither did "Breast Cancer in 20-Year-Old Girl." I fruitlessly searched every site I could think of, turning up contradictory results.

An hour into my self-diagnosis, it occurred to me to call a doctor.

Living away from home and my usual doctors, I called my insurance provider. After 45 minutes on hold, an operator listed four doctors in Manhattan that would accept my insurance. The first three were booked through November. The fourth could see me the week before Thanksgiving.

The thought of not knowing for nearly a month was unbearable. Tears welled up in my eyes and fear was obvious in my voice when I confirmed a time with the receptionist. She must’ve heard how scared I was, she told me that they could squeeze me in early the next day.

The next morning, after arriving an hour early, I was told that the doctor’s office was out of network for my insurance. They’d take me, but I’d have to cough up almost $200 just to be seen, and I’d have to pay out of pocket for testing –up to $3,000.

I was shocked. Something was wrong with me and I was getting it checked. I was being responsible. I had called my insurance company, thinking they would send me somewhere I could afford. Not only was I worried about a potentially serious health problem, I was also concerned that I wouldn’t be able to have it looked at because it was too expensive. It turned out that the doctor’s office was willing to work with me. Maybe they just wanted to get me, crying and hyperventilating, away from their other patients out of their waiting room. But they took me; they didn’t turn me away.

The doctor examined the lump and sent me for a battery of tests.  After being poked and prodded and monogrammed and sonogrammed, I waited.

Eventually, I was told the good news—a benign cyst and an inflamed lymph node. Two completely harmless conditions that I could have agonized over for weeks and weeks, if I hadn’t known what it could have been.

If you are truly concerned that you might be sick, get it checked out.  A lot more doctors’ offices than you might think are willing to work out payment plans. It’s worth knowing what you are facing.

Hopefully, it’ll end up being nothing, but if it is something worse, catch it as early as possible.

Have you ever ignored a health problem, because you thought you couldn’t afford to get it looked at? Are you putting off going to see a doctor because you don’t want to know if you are sick?

Editor's Note: Medical news is a popular but sensitive subject rooted in science. We receive many comments on this blog each day; not all are posted. Our hope is that much will be learned from the sharing of useful information and personal experiences based on the medical and health topics of the blog. We encourage you to focus your comments on those medical and health topics and we appreciate your input. Thank you for your participation.

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Filed under: Health • Healthcare Costs • Women's Health


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Barbara   November 1st, 2009 11:18 pm ET

When I was in college, I got a urinary tract infection and thought I would wait a few days to see if it would go away on its own. Well, it turned into a kidney infection and I had to get IV antibiotics, as I recall. Fortunately, paid for by the student health plan. Then a year or two after college, in a low-paying job with no health insurance I got another UTI. That time I had to pay about $600 out of pocket to get it treated (I went to the ER – didn't know where else to go), but I wasn't willing to put it off and risk another kidney infection. The hospital set up a payment plan for me. I've learned all the steps to be careful and it's been several years now since my last UTI.

Mike Januszczyk   November 12th, 2009 12:59 pm ET

I had recently visited my PCP (Primary Care Physician) for a routine annual medical exam and advised i noticed a few bumps on my right breast. The PCP advised that they felt like enlarged lymph nodes and suggested i get them looked at. I was scheduled for ultrasound scans and mammograms at my local hospital. The tests showed small matter that could have been benign or possible cancer. A subsequent biopsy revealed the tissue was benign. Two weeks later i received a bill from the hospital and physician for over $3000 (this is after the CIGNA discount). My wife and i have a high deductible CIGNA insurance plan through her work - we also have a HSA spending account which totals 1200 per person for the year. Since we use the HSA account for general visits and dental visits we have to pay 65% of the $3000 bill out of pocket. Had we not had insurance the bill would be close to $5000 (insurance discount would not apply).

We are outraged how expensive my preventative care came out to be. Had i know it would cost us this much i probably would not have agreed to all the tests. After all i am not sick and all i wanted to do is make sure i didn't have cancer. We are very disappointed in how expensive this health care system is. It is time for change.

Judy Fabri   November 18th, 2009 3:59 pm ET

Dear Sanjay Gupta, I watch CNN on a regular basis and I say you this morning interview a woman about the new guidelines concerning mammograms and you were very concerned, even distressed that some women would forestall having one because of it. I would like to know where has this concern been all of these months that this healthcare debate is going on. There are millions of women like me who do not have access to medical care either for basic care like doctor visits and prescriptions when I'm sick must less tests. With the exposure and power of the press that you have, why are you showing no concern for these millions of Americans who do not have access to healthcare as you seem to for those who have healthcare services and will not use it, is it because they are of a better class of person and thus deserving of more attention from you? Thanks Judy Fabri, Tennessee

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Get a behind-the-scenes look at the latest stories from CNN's chief medical correspondent, Dr. Sanjay Gupta, and the CNN Medical Unit producers. They'll share news and views on health and medical trends -- info that will help you take better care of yourself and the people you love.

Editor's Note

Medical news is a popular but sensitive subject rooted in science. We receive many comments on this blog each day; not all are posted. Our hope is that much will be learned from the sharing of useful information and personal experiences based on the medical and health topics of the blog. We encourage you to focus your comments on those medical and health topics and we appreciate your input. Thank you for your participation.

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