Comments on: Finding Amanda http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/ Mon, 21 Dec 2009 21:13:33 +0000 http://wordpress.com/ hourly 1 By: SYK http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-1629 SYK Wed, 04 Jun 2008 20:01:36 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-1629 I found these really great audio podcasts on autism on the internet. It seems that lots of Autism Societies around the world are linking to them. I got the link from Tony Attwood's site. Audio podcasts on autism: http://www.mic.mypodcast.com. I found these really great audio podcasts on autism on the internet. It seems that lots of Autism Societies around the world are linking to them. I got the link from Tony Attwood's site. Audio podcasts on autism: http://www.mic.mypodcast.com.

]]> By: Juliana Handoko http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-858 Juliana Handoko Thu, 08 May 2008 10:09:02 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-858 Dr. Gupta, Joanna our youngest 12 yrs old girl now, was diagnosed "different" since she was 6 mths old. She did not respond to any sound, light and calls. But she only will smile when we touch her cheek The first month of her life, she was so quiet, but almost every night before sleep she cried without any cause. During the pregnancy until Joanna was 6 months old I never been sick, so that I never swallowed any medication. However, during the 3rd trimester my mom said that my palm was warm, like my body temperature was high, and rarely some blood comes out of my nose. and when my pregnancy was 8 months/32 weeks, I felt that my baby was stretching inside my womb, and hurt so bad. we went to the doctor and I was ready to have the caesar, but the doctor told us that our baby was in the horizontal position (should be in the vertical position with her head down), and softly the doctor pushed the baby to the proper position. When the time due, Joanna could not find her "way out" of my womb, so she was born thru caesar surgery. When she was 1,5 yrs old, the "autism doctor" said that it needs 6 symptoms to be diagnosed autism, and Joanna does not have. Joanna's eye contact only last 5 seconds not more, but she now can speak although not fluently, sometimes the other way around (like : "mommy's skirt... looks like"). Joanna can not squat stable, has crossed eyes, so difficult to concentrate (so until now still can not read), so hard to remember what we told her to do. But according to the allergy test, she is not allergic to casein and gluten, but to asparagus, soy and vanilla. Her hair test result showed that her mercury was 1,5 times above the limit, lead and aluminium was 2 times above the limit. Now Dr. Gupta, is there any connection between what happend when she was 8 months in my womb and her condition now ? I have been searching for the answer, but I could not find any. I still give her diet. And I am sure that she is still progressing according to GOD's plan. It's a miracle that she can walk and talk now. We are waiting for GOD's miracle unto her. If it is possible, may I have the email address of Mrs. Gay Aguilera ? Thank you for your concern about the autism world, God bless you, Juliana Handoko Jakarta-Indonesia Dr. Gupta,
Joanna our youngest 12 yrs old girl now, was diagnosed "different" since she was 6 mths old. She did not respond to any sound, light and calls. But she only will smile when we touch her cheek
The first month of her life, she was so quiet, but almost every night before sleep she cried without any cause.
During the pregnancy until Joanna was 6 months old I never been sick, so that I never swallowed any medication.
However, during the 3rd trimester my mom said that my palm was warm, like my body temperature was high, and rarely some blood comes out of my nose. and when my pregnancy was 8 months/32 weeks, I felt that my baby was stretching inside my womb, and hurt so bad. we went to the doctor and I was ready to have the caesar, but the doctor told us that our baby was in the horizontal position (should be in the vertical position with her head down), and softly the doctor pushed the baby to the proper position.
When the time due, Joanna could not find her "way out" of my womb, so she was born thru caesar surgery.
When she was 1,5 yrs old, the "autism doctor" said that it needs 6 symptoms to be diagnosed autism, and Joanna does not have.
Joanna's eye contact only last 5 seconds not more, but she now can speak although not fluently, sometimes the other way around (like : "mommy's skirt... looks like").
Joanna can not squat stable, has crossed eyes, so difficult to concentrate (so until now still can not read), so hard to remember what we told her to do.
But according to the allergy test, she is not allergic to casein and gluten, but to asparagus, soy and vanilla.
Her hair test result showed that her mercury was 1,5 times above the limit, lead and aluminium was 2 times above the limit.
Now Dr. Gupta, is there any connection between what happend when she was 8 months in my womb and her condition now ?
I have been searching for the answer, but I could not find any.
I still give her diet.
And I am sure that she is still progressing according to GOD's plan.
It's a miracle that she can walk and talk now.
We are waiting for GOD's miracle unto her.
If it is possible, may I have the email address of Mrs. Gay Aguilera ?
Thank you for your concern about the autism world,

God bless you,
Juliana Handoko
Jakarta-Indonesia

]]> By: joelle http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-559 joelle Thu, 17 Apr 2008 08:48:36 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-559 Mr.Gupta,do you read this blog?and what Phylis M.says?The only way to help those children is to keep them in public school system with teachers and parents aware of the problem and with some knowledges. Philis M.:your children doesn't have disabilities. I am from Belgium and here sometimes they put autistic children with psychotic's ones or worth,with trisomics!! Mr.Gupta,do you read this blog?and what Phylis M.says?The only way to help those children is to keep them in public school system with teachers and parents aware of the problem and with some knowledges.
Philis M.:your children doesn't have disabilities.
I am from Belgium and here sometimes they put autistic children with psychotic's ones or worth,with trisomics!!

]]> By: Phyllis M. http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-500 Phyllis M. Wed, 16 Apr 2008 01:12:33 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-500 There are many families from counties all over Florida who have children with Autism and Autism Spectrum Disorders that are being restrained and put in time-out and locked seclusion rooms in the public school system. Our children are being injured physically and mentally because of their disabilities and the lack of appropriate programs and highly qualified teachers available to educate them in the public school system. No laws, no regulations, no tracking system, no consent from parents and no parent notification in many cases. The trauma this has caused our children and the emotional drain to our families should never happen to any child or family. There are many families from counties all over Florida who have children with Autism and Autism Spectrum Disorders that are being restrained and put in time-out and locked seclusion rooms in the public school system. Our children are being injured physically and mentally because of their disabilities and the lack of appropriate programs and highly qualified teachers available to educate them in the public school system. No laws, no regulations, no tracking system, no consent from parents and no parent notification in many cases. The trauma this has caused our children and the emotional drain to our families should never happen to any child or family.

]]> By: joelle http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-270 joelle Tue, 08 Apr 2008 07:51:01 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-270 Dr.Gupta, I would be happy to be in touch with Amanda if she needs friends. Joelle from Belgium. Dr.Gupta, I would be happy to be in touch with Amanda if she needs friends. Joelle from Belgium.

]]> By: Tifferjade http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-257 Tifferjade Sun, 06 Apr 2008 22:47:59 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-257 Thank you very much for making everyone aware of Amanda's videos. She did an amazing job and I thank her also for giving us an insight into her daily life as someone living with a form of autism. This topic is talked about more often, however not from their point of view. She did a fantastic job! Thank you very much for making everyone aware of Amanda's videos. She did an amazing job and I thank her also for giving us an insight into her daily life as someone living with a form of autism. This topic is talked about more often, however not from their point of view. She did a fantastic job!

]]> By: joelle http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-252 joelle Sun, 06 Apr 2008 08:16:43 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-252 Hello Dr.Gupta, Seeing again 'we have autism' (shouldn't say "have autism"-it is not a disease or a disability or a brain disorder-"to be autistic" or to have autistic behaviors as it is a non communication,a denial),I would like to ask you ,when you look at the video of the triplets family(Maryland),what do you "see"?.The same about the boy with the father working for U.N.,what do you feel? PS:I think I could help the triplets family,if they are interesred for a "lady au pair".? Hello Dr.Gupta, Seeing again 'we have autism' (shouldn't say "have autism"-it is not a disease or a disability or a brain disorder-"to be autistic" or to have autistic behaviors as it is a non communication,a denial),I would like to ask you ,when you look at the video of the triplets family(Maryland),what do you "see"?.The same about the boy with the father working for U.N.,what do you feel?
PS:I think I could help the triplets family,if they are interesred for a "lady au pair".?

]]> By: Gay Aguilera http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-251 Gay Aguilera Sat, 05 Apr 2008 21:59:21 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-251 Dr. Gupta, My special thanks to you and CNN on the eye opening and ongoing dialogue on Autism. I am the grandmother of a beautiful 5 1/2 year old girl, who was diagnosed with mild to moderate Autism. She is physically perfect in every way, but highly limited in her development. I see frustration on her face and in her actions when she can't process what she is hearing or is asked of her. She tries so hard to "send it back out to us" and can barley find 3 words in a row to let us know, all the while our hearts are both hopeful and broken. I write to you because she has 4 healthy and well developed siblings, all of whom I have been involved in their development. My little "Desi" was also developing along at the completely normal rate of a smart little 18 month old, UNTIL, she had her 3 in 1 vaccination, and within weeks, NOT MONTHS, "THE LIGHTS WENT OUT". It was almost as though a cloud came over her. You could see it in her eyes, a dimming of understanding and her developmental skills slowed almost to a stop. She continued to develope physically, but she stopped in most every other way, trying to communicate, but not able to. She is finally doing more, saying 3-4 words in a row, but it has taken several years, lots of special classes, both school and social skills being presented in a way she can respond to. She will never catch up to her siblings, although so completely special; as though God couldn't fix what man damaged, but helped her with a beautiful little soul. We pray for her every day and hope one day ,she will be able to "come through the door", but until then, her parents and I KNOW the exact time this occurred to an otherwise normal, adorable child. VACCINATIONS ! Thank you for providing this forum. Sign me, "a hopeful, but heartbroken grandmother ". Dr. Gupta,
My special thanks to you and CNN on the eye opening and ongoing dialogue on Autism. I am the grandmother of a beautiful 5 1/2 year old girl, who was diagnosed with mild to moderate Autism. She is physically perfect in every way, but highly limited in her development. I see frustration on her face and in her actions when she can't process what she is hearing or is asked of her. She tries so hard to "send it back out to us" and can barley find 3 words in a row to let us know, all the while our hearts are both hopeful and broken.
I write to you because she has 4 healthy and well developed siblings, all of whom I have been involved in their development. My little "Desi" was also developing along at the completely normal rate of a smart little 18 month old, UNTIL, she had her 3 in 1 vaccination, and within weeks, NOT MONTHS, "THE LIGHTS WENT OUT". It was almost as though a cloud came over her. You could see it in her eyes, a dimming of understanding and her developmental skills slowed almost to a stop. She continued to develope physically, but she stopped in most every other way, trying to communicate, but not able to.
She is finally doing more, saying 3-4 words in a row, but it has taken several years, lots of special classes, both school and social skills being presented in a way she can respond to. She will never catch up to her siblings, although so completely special; as though God couldn't fix what man damaged, but helped her with a beautiful little soul.
We pray for her every day and hope one day ,she will be able to "come through the door", but until then, her parents and I KNOW the exact time this occurred to an otherwise normal, adorable child. VACCINATIONS !
Thank you for providing this forum.
Sign me, "a hopeful, but heartbroken grandmother ".

]]> By: jamie meyers http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-249 jamie meyers Sat, 05 Apr 2008 13:01:50 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-249 Dr. Gupta, I have been watching with interest the stories about autism on CNN and I was wondering if anyone had looked into babies who were breastfed vs. babies who were bottle fed during infancy and the statistics of autism in those two groups. I haven't heard anything mentioned about that and I was wondering if there may be something in the bottle fed substances that may contribute to the condition. Thank you, Jamie Meyers Dr. Gupta,
I have been watching with interest the stories about autism on CNN and I was wondering if anyone had looked into babies who were breastfed vs. babies who were bottle fed during infancy and the statistics of autism in those two groups. I haven't heard anything mentioned about that and I was wondering if there may be something in the bottle fed substances that may contribute to the condition.
Thank you,
Jamie Meyers

]]> By: joelle http://pagingdrgupta.blogs.cnn.com/2008/04/02/finding-amanda/#comment-247 joelle Sat, 05 Apr 2008 12:29:11 +0000 http://cnnpagingdrgupta.wordpress.com/?p=12#comment-247 Dr.Gupta, I would like your view about the family of 6 children(autistics??-see on CNN/intl.-parents Mormon),about the whole picture of it.And what does it "inspire"you as a dad,when you see one of the youngest rolling his bottle until it fall of the tabble!? There is something that is used as therapy here in Belgium:hyppotherapy(horses) Dr.Gupta, I would like your view about the family of 6 children(autistics??-see on CNN/intl.-parents Mormon),about the whole picture of it.And what does it "inspire"you as a dad,when you see one of the youngest rolling his bottle until it fall of the tabble!?
There is something that is used as therapy here in Belgium:hyppotherapy(horses)

]]>